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Four Rivers Dementia Alliance

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Final Year Research - Mental Wellbeing Of Dementia Caregivers Living In Rural Devon

My name is Kate Parkin, and I’m in my final year at the University of Plymouth studying Psychology. Through both my degree and personal experiences, I’ve developed a strong passion for supporting people in the community who are living with dementia. Last year, I took a break from the usual academic routine to complete a placement year as a research intern at the Plymouth Science Park with Ian Sherriff and his colleagues. During this time, I investigated rural dementia-friendly communities across England, a project that has now been completed and is awaiting publication! I also gave a summary of some of my research at the South Hams Dementia Forum in July 2025 and highlighted in the 4RDA News Page. I’m now back for my final year and excited to be starting my dissertation project.

My project aims to investigate the impact of the COVID-19 pandemic on the mental wellbeing of dementia caregivers living in rural Devon, with a particular focus on how changes in formal and informal support networks have shaped their experiences. Prior research has highlighted that limited access to healthcare and community support in rural settings can intensify caregiver stress and isolation (Mogan et al., 2024; Zahed, 2020; Koyama et al., 2017). These challenges were amplified during the pandemic, as restrictions disrupted both professional and community-based support systems (Manca et al., 2022).

While national studies have explored the pandemic’s broad impact on dementia care, few have examined its effects within the specific rural context of Southwest England, where service provision and social connectedness are often constrained. This research therefore aims to address that gap through a focus on caregivers in rural Devon.

The idea is to use a focus group method to capture descriptions about the experiences of caregiver’s, their coping strategies, perceived changes in support, and what could be done to help. As well as this, I hope to also use questionnaires to understand caregiver’s mental wellbeing and their access to formal (health and social care services) and informal (family, peer, and community) support before, during, and after the pandemic.

At the last South Hams Dementia Forum, I delighted to hear the enthusiasm from those attending fin helping me with this project and I'm really looking forward to seeing what we shall learn.

If you are reading this article and you can assist me with this project but would like to know more detail, I can be contacted directly using the following email address: 

katherine.parkin@students.plymouth.ac.uk  

Please include your name, telephone number and email address and I will follow up with you.
Thank you.

30th November 2025

Join Dementia Research

At the September meeting of the Four Rivers Dementia Alliance a presentation entitled Join Dementia Research was given by Elly French from the Research Engagement and Inclusion Team of The South West Peninsula Regional Research Delivery Network (SWPRRDN) which is part of the National Institute of Health and Care Research (NIHR) whose mission is to improve the health and wealth of the nation through research. The NIHR work in partnership with the NHS, universities, local government, other research funders, patients and the public. The NIHR funds, enables and deliver world-leading health and social care research that improves people's health and wellbeing and promotes economic growth. The NIHR invests more than a billion pounds a year in research. This funding goes towards research projects, career development awards, and the people, facilities and technology that enable research to thrive.
Dementia and Neurodegeneration is one of 29 specialties that the NIHR RDN covers and the NIHR are working in partnership with Join Dementia Research (JDR). Join Dementia Research is a nationwide service that enables anyone over 18 to register their interest in dementia research. Since JDR's inception in 2015, over 50,000 people have signed up the service and there have been over 48,000 enrolments onto dementia studies and there is a drive to find more volunteers to sign up for Dementia Research.

WHY JOIN DEMENTIA RESEARCH?

1. There are currently 850,000 people living with dementia in the UK. This is set to rise to 1 million by 2025.

2. It is only through research that diagnosis, treatment and care can improve and hopefully one day find a cure.

So if you are looking for studies to take part in, but don't know where to find them, then read through the attached PDF of the presentation and join online or over the telephone.

Research options are open to everyone and anyone with or without dementia can sign up. You can even register on behalf of someone else.

There are a variety of studies from prevention and treatments to improving the quality of life. As an individual signing up you can choose which studies you would like to take part in. The research you take part in will be your choice and work around your day to day life.

Please think about joining Dementia Research, your effort will be gratefully appreciated by all the Researchers and will give something back to society.




Community Engagement - Join Dementia Research (pdf)

Join Dementia Research

17th September 2025

Time For Dementia

Jo Symons, Time for Dementia Officer at the Alzheimer's Society, gave a short presentation at the Four Rivers Dementia Alliance (4RDA) September meeting about the 'Join Time for Dementia'. This is an innovative, award winning training programme, designed to educate undergraduate healthcare professionals to improve their knowledge, attitude and empathy towards people with dementia and their carers.

The basic principle is that students from a participating university will be paired with a family affected by dementia and arrangements for meeting can be face to face or virtual.

These meetings offer a unique learning opportunity for the students but are also a great chance for a family affected by dementia to share their experiences of living with the condition.

The benefits include contributing towards a better future for people living with dementia, help in the training of healthcare students, who will graduate with new knowledge and understanding when they work within the community and to be part of a network of families affected by dementia and hearing about new opportunities.

For more information, see the website listed or email:timefordementia@alzheimers.org.uk

Time For Dementia - Improve Future Healthcare (pdf)

Time For Dementia

15th September 2025

Rural Dementia Friendly Communities - Local Research

Katherine Parkin a student studying a BSc (Hons) Psychology degree at Plymouth University has completed her integrated placement year undertaking research into Rural Dementia Friendly Communities, working closely with Dementia Friendly Parishes Around the Yealm. At the June meeting of the South Hams Dementia Forum, Kate gave a presentation of her recent research covering the period September 2024 to May 2025.

A summary of her recent research and presentation has been provided to the Four Rivers Dementia Alliance and it makes interesting reading on the lack of rural dementia resources in England, but where available and usually provided by local organisations and local communities, what a significant and positive impact it has on people living with dementia in a rural setting.

Kate became interested in the provision and support of dementia, especially in a rural setting as both her parents have struggled with supporting Mothers in a rural area. 

Kate is hoping in her final year to get Ethical approval from the University of Plymouth to conduct a review of existing research and support including conducting interviews with carers past and present and expanding her survey sampling. 

Both Four Rivers Dementia Alliance and Dementia Friendly Parishes Around the Yealm are grateful for the work undertaken by Kate and shared with other local organizations as to the current picture in this part of the South Hams.

Rural Dementia Friendly Communities - Initial Research Review (pdf)

7th September 2025

Dementia UK Admiral Nurse Clinics In Devon

Dementia UK have partnered with Nationwide Building Societies across the UK to deliver free 45 minute Admiral Nurse appointments within branches. Admiral Nurses offer informal, confidential emotional support, information and guidance around all aspects of life with Dementia including pre-diagnosis and post-bereavement conversations.

Branches are revisited approximately every 3 months, with the next visit to Plymouth being September 9th, 10th and 11th. Bookings are available from the first Friday in August for September dates. There may also be other locations nearby with closer dates, so please check.

You can book appointments in a number of ways:

• Via the Dementia UK website. See the website link below or scan the QR Code attached.

• By texting APPOINTMENT to 0747872 4000 and they will get in touch to book an appointment with you via the telephone.

• Contacting your local branch and asking for support in booking an appointment (Plymouth: 0345 266 0439)

Admiral Nurses provide a wonderful service to both people living with dementia, their carers and their families and are there to provide support in a thoughtful and caring way to all.

Dementia UK - QR Code To Book An Appointment (pdf)

Book An Appointment Through Dementia UK At A Nationwide Branch

3rd June 2025