Rare Dementia Support - Dementia Voices: Stories and Science in Conversation
At the second 'Dementia Voices: Stories and Science in Conversation' event at the Box, Plymouth, (See previous News Item 'Dementia Voices - Raising Awareness Of Dementia' dated:8th January 2026), Karen Tapson gave an insight into two rare dementia's out of the seven they support - 'Posterior Cortical Atrophy' (PCA) and 'Young-Onset Alzheimer's Disease' (YOAD).
The core signs of PCA is progressive visual impairment, usually to people in their 50's and 60's and despite no initial loss of memory, Alzheimer's Disease is the underlying cause. For YOAD it usually impacts on people in their 40's, 50's and early 60's. Often people are physically fit and working with families.
Rare Dementia Support outlined how they help support people living with these types of dementia as well as support for their family members and carers. Karen's presentation is attached for you to look at and details what Rare Dementia Support do and how they can be contacted if you need help through advice and ongoing support.
As stated this presentation was part of the University of Plymouth's 'Dementia Voices - Raising Awareness Of Dementia'. If you would like to attend a future session then a third one has been scheduled.
The third event in the series:
Date: Thursday, 26 February 2026
Time: 11:00 am – 1:00 pm
Venue: The Box, Plymouth – Foulston Room, Refreshments are provided.
Registration through Eventbrite is now open and can be booked - click here. If you have any questions, require more information or would like to be more involved with these rolling events then you can contact:
Daniela Oehring at email address or Krithika Anil at email address, both of the University of Plymouth, in partnership with Rare Dementia Support.
Rare Dementia Support Presentation - January 22 2026 (pdf)
Rare Dementia Support - Contact Link
31st January 2026
